I have been very busy the last week worrying about our little Summer. She is still such a strong baby! As you know, she had surgery on her bowel last Friday and we have been anxiously standing by.By Sat. night she started needing less medications. They weren't giving her morphine as often, decresed her dopamine (for her blood pressure) and were watching less. Our night nurse, Sarah (who had taken care of Brooke as well) had fun "playing" with her. We went to see her Sunday morning and Sarah had dressed her up for us :)
For the next two days she began coughing against her breathing tube, setting off all kinds of bells and alarms. The nurses were laughing at how opinionated she is already. But, we have been told several times they all like feisty preemies! She was so ready to have the tube taken out! Monday morning after rounds they took it out and she was a very happy little girl :) Once the tube was out, they moved her to an isolet (incubator) to keep warm and grow, and she moved into a shared room. These are all good signs in the NICU because it means she is on the low maintenance list! She still needs a little extra oxygen, but not much. She has also been off morphine and just taking Tylenol for a few days, so she is back to her little drama queen self...it is so nice to see her happy and content. 
I have held her a few times and she loves it as much as I do. I can't believe she is already 3 weeks old! As of yesterday she weighed 3 lbs. 2 oz. and is still gaining. It will be still some time before we can bring her home, but for now, we are grateful to have her with us still.
I talked to one of the docs a couple days ago about Omegaven and she offered to help us get the ball rolling with it. It sounds like they welcome anyone who would like to try it and be part of the case study. We are willing to do whatever we can to avoid liver damage from TPN...we are so grateful to those who have contacted us with information!
Well, we are off to visit Summer :)
