Summer has surgery tomorrow at 5:00 PM to get her intestines reconnected. Usually surgery is 6-8 weeks after the initial one, but since she has such a small amount left, they feel she would be much better off doing it sooner...the first one she had was July 30th, almost 5 weeks ago. Once she is reconnected, the extra fluid she had been losing will be able to be absorbed and processed by her colon. She will still have to be hooked up to TPN 24/7 for about the first 2 months until the GI team can figure out how to balance her nutrition needs based on how well her intestines recover. She has still been taking in Ellocare, which is a partially digested formula with only 15 calories (breast milk has 20). The lower fat content makes it much easier on her system for both absorption and processing. I am hoping once she is reconnected they can try her on breast milk again. I have filled up half of an upright freezer with breast milk from pumping since the twins were born. Maybe I will have to donate it to a breast milk bank that's in California.....sigh. We will hope for the best though, that is all we can do! Summer is also ready to be moved to a regular hospital room. She no longer needs the extra ICU care...so she will recover in the NICU and then get moved shortly after. This is great news for our family...in the NICU no one under 12 can visit unless a sibling, and the room is not very kid friendly anyway. In a regular room we can have our kids entertained by a TV on a couch with our own private bathroom. OOOOH, living the high life! When Summer was still at Evergreen she had a room like that and it was really nice :)
Summer's foot is finally a little longer than my pinky
STREEETCH
Check out the shoulders, getting chubbier all the time
Summer prefers her binky on her nose...not listening to you, mom!
Maybe if she covers her eyes, I will stop flashing her...I doubt it :)
