As of a couple of days ago, Dr. Horslin (the head GI doc) changed Summer's food intake orders. She has been on continuous feeds through her NG tube and taking a binky trainer 3 times a day for suck/swallow practice. Each day they have increased her hourly amount by one cc...she was up to 6 cc's an hour today and is still doing well! That equals about 4+ ounces per 24 hour period...getting closer to normal baby amounts, yeah :) As they have increased her hourly amount, they have also been slowing lowering the amount of TPN she is getting...yeah again :) Maybe a nice shade of pink skin is in her future after all!
I went to visit Tues. with my mom and Morgan and my mother-in-law and brother-in-law surprised us. Charles has never seen Summer and Julie (mom in law) hasn't seen her for a couple of weeks. Summer loved cuddling with her Grandmas...
Grandma Julie cuddles Summer
Uncle Charles doesn't give in to the powerful suggestions to hold Summer, but he does touch her head...and strike a pose
Although Summer is number 15 grandchild on both sides, she will be just as spoiled as the rest by these two!
My parents and I have been working hard on the house this week. My dad ripped out the carpet in Summer's room to reveal a wood floor. With her increased chances of having respiratory issues, it is better not to have carpet in there collecting dust and more. I have been painting, with a little help from my very "helpful" daughter, Morgan. She loves the fact that it is pink. Yes, you heard me right, bubblegum PINK! I was standing in the hallway this morning looking at her doorway...remember the movie Poltergeist? Well, there is a pink one giving off quite the Ora in there...lit up the whole room with a rosy glow! I am still doing a Dr. Seuss theme so it is not all pink, just halfway up the wall, but no mistakin' it for any other color! I will definitely share pics when it is all done!
Morgan is very intent on perfection...
...with a paint roller just her size...
...and a mind of her own!
I wasn't going to paint that area pink, but now that it is started...
After she painted on her elbow length pink evening gloves, Morgan did request to please clean up...of course this had to be after she had gotten out of the bathtub no more than 20 minutes ago! Into the sink she went with the rollers and brushes..."bath" number 2! She likes to streak around the house so after a while she made it into the tub again for bath number 3 after a little accident...aye carumba this girl can make a mess!!!
After talking with the nurse today, it sounds like the doc is pushing to get Summer home next week....we're keeping our fingers crossed all goes well with that. She still has some drainage coming out of her incision that they are watching...it is still a little open. She is also still on oxygen and I don't know when she will be ready to be taken off that. It sounds like they would still send her home on it...just to make us even more nervous! But, either way it goes, she needs to come home. She will be so much more stimulated and cuddled...or smothered by the kids... It will really help her (and ME) feel better quicker.
